A father of a six-year-old girl who takes a cocktail of drugs daily to keep her alive due to an extremely rare genetic condition has said that fears raised that the NHS could be “on the table” in post-Brexit trade talks with the USA is “terrifying”.

Duncan Bamford, a graphic designer and illustrator from Machynlleth, told the Cambrian News that his daughter Rosa Butler suffers from cystinosis – one of just 2,000 known cases in the world.

Little Rosa, who was diagnosed aged three, relies on taking 10 different medicines daily, and if those were made more expensive and became unavailable, she would die, Duncan said.

The 39-year-old was reacting to trade documents leaked by the Labour Party last month that are said to show the US pharmaceutical companies “want to break the NHS reliance on generic, low cost drugs”.

Prime Minister Boris Johnson has repeatedly said that the “NHS is not for sale”, but the leaked documents state that “the impact of some patent issues raised on NHS access to generic drugs will be a key consideration going forward”.

“Stopping the NHS generic drugs reliance is the big prize for pharmaceutical companies in the US,” Duncan said.

“Rosa’s primary drugs to treat cystinosis currently cost the NHS around £13,000 per year in total.

“In these trade documents the generic drugs that the NHS has provided would no longer be available to the NHS.

“The cost of Rosa’s primary drugs would then rise to an estimated £110,000, and possibly more.”

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