A WOMAN whose two daughters both suffer from cystic fibrosis, has raised over £1,000 to fund a special room at Ysbyty Gwynedd for children who suffer from the disease.

Stephanie Pugh, of Garndolbenmaen, is a mother of six children and her youngest two, Alyssa, 12, and Scarlette, nine, have both been diagnosed with cystic fibrosis.

CF is a genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys and intestine. Long-term issues include difficulty breathing and frequent lung infections.

Stephanie told the Cambrian News that having two children with the disease can be extremely difficult and it has forced both her and her husband, Adrian, to give up their employment and become full-time carers for their children.

She said: “Having two children with CF is hard; our days are filled with giving medicines, physiotherapy and frequent hospital visits.

“The girls get ill easily and catching just a simple cough or cold means they have two weeks of extra antibiotics. If they don’t work then it’s two weeks of IV antibiotics which we are trained to give at home.

“We home-schooled the girls now because they were getting ill at school so often. Each chest infection they get causes irreparable damage to their lungs and they have frequent hospital visits.”

Stephanie, who is also a member of the Gwynedd Paranormal Investigations team who carry out ghost hunts across the country, suggested that funds could be raised through several of the year’s investigations to go towards the room.

Read the full story in this week’s Arfon/Dwyfor edition of the Cambrian News