A Tywyn man who suffers from a rare condition is planning on running 10k to raise money and awareness.

Mark Edwards has a rare condition called Pku (phenylketonuria)which means he cannot break down phenylalanine into tyrosine. Too much of a build-up would then in turn cause other conditions and eventually, if untreated after a long time, irreversible brain damage.

Mark said: “There is a drug available, which has been approved for all countries in Europe called kuvan, which the UK government won’t approve. Currently I’m allowed 6 grams of protein a day. Put into context, one small pack of wotsits is 1g of protein. If kuvan was approved here and I was responsive it would mean my protein intake could be increased.”

Mark is currently training to take part in the Great Manchester Run next month to raise money for a charity set up for those with Pku.

Mark added: “The nspku receive no government funding, so rely totally on the generosity of donations.”

The Great Manchester Run 10k takes place on 19 May.

You can help Mark raise money by donating directly to their fundraising page - https://www.justgiving.com/Mark-Edwards-nspku-pku