A MACHYNLLETH mother has urged mid Wales residents to back a charity’s fund-raising efforts to pay for specialist paediatrician nurses, saying her daughter’s nurse is her “rock”.
The Roald Dahl Marvellous Children’s Charity is holding a special event in September, but is also hoping people across Wales will take part in a fund-raising event to raise money for projects such as the charity’s Roald Dahl Nurses, which provides specialised nurses for youngsters with rare or undiagnosed conditions.
Little Seren Hughes is one of the youngsters who benefit from the charity’s work in providing nurses, and Seren’s mum Ruth has praised the impact the scheme has.
Six-year-old Seren has a condition called focal epilepsy, which leads to seizures due to abnormal electrical disturbances in her brain.
Her condition means Seren needs to be given medication regularly, and has recently had an operation at Great Ormond Street Hospital to try to stop the seizures.
That has meant regular trips to hospitals in London and Cardiff, where Roz Atkinson, of the Roald Dahl Nurses, is based and provides help.
Ruth said: “She’s my rock. I think she’s like a friend, really, who I can phone up on good days, bad days and I can explain the situation. And she’ll listen. She understands.
“She doesn’t think I’m an over-protective mother who’s making too much of things. She just makes me feel I’m doing a good job, that I’m doing fine.”
This weekend Meibion y Mynydd is raising money for the Seren appeal, for ongoing physio rehabilitation, travelling, equipment and treatment for Seren.
Read the full story in this week’s south editions of the Cambrian News, available in shops and online tomorrow






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