A host of celebrities, including The Crown star Olivia Colman, will come together this weekend to help raise money for a desperately ill Mid Wales woman who "needs a miracle", writes Emily Beater.

Oscar winner Colman joins actor Matthew Goode from Downton Abbey and comedian Lee Mack in a bid to raise funds for life-saving surgery for Jenny Rowbory, from Aberangell.

The live event, hosted by BBC Sport presenter Hugh Ferris, will also feature ex-rugby player Jonathan Davies and comedian Paul Kerensa.

Jenny is severely unwell with complications from Ehlers Danlos Syndrome.

The 34-year-old, who has been bedridden for 15 years, suffers from faulty connective tissue, causing her skull to dislocate itself, and her vertebrae to snap out of place.

Her family hope to raise money through GoFundMe for Jenny’s urgent surgery in the United States.

Ann Rowbory, Jenny’s mum, said: “Jenny is in screaming agony 24/7, but unable to scream.

“Her medical case is highly complex and beyond UK neurosurgeons’ training or experience. Our fundraiser is her only chance to give her a world-class neurosurgeon who is very experienced with severe EDS patients.”

Jenny’s parents, who are her carers, described their daughter’s condition as so fragile that they had to use scissors to cut her out of her clothes.

She cannot move a millimetre without causing a “massive crack”, as the vertebrae in her neck pull out of position.

Ann told the Cambrian News: “Jenny recently had to go to A&E as vertebra in her neck moved and almost completely obstructed her airway. She stayed in hospital for five days and there was nothing the NHS could do for her."

In January, Jenny had surgery in the UK to try to correct her craniocervical instability (CCI) and atlanto-axial instability (AAI), which cause her neck to fail to support her spine and her skull to sink in on itself.

Her parents say the surgery has left Jenny “more disabled than ever” and unable to move her head off her pillow.

Jenny’s family will need to raise £750,000 for her operation in the US.

The sum includes Medevac flights, which are the only way to safely transport her, the surgery itself and the intense rehabilitation she will need to recover.

Ann said: “Jenny can’t be left like this. Every second is unbearable and she can’t cope.”

Jenny has been unable to have her hair washed since January as it is too dangerous to touch the back of her head, Ann wrote on her daughter’s GoFundMe page.

“It’s awful for her, and we wish we could help her, but we’re just left helpless. It’s hard not to be able to meet her basic needs because it would kill her," the post continues.

“This is the only option left to us. We need a miracle to be able to raise this kind of money. Any contribution, large or small, we would be eternally grateful for."

The fundraising event to save Jenny’s life will take place live on YouTube on Sunday, 29 November.

Billed as an “evening of entertainment”, it will also feature bestselling author Adrian Plass and music from Graham Kendrick.

Jenny has now deteriorated too much to communicate.

A few weeks ago, she tweeted: “I need help desperately. I’m so, so tired and weak now.

"Thank you to everyone who has donated so far. You’ve been so kind and generous. I’m very grateful.

"There’s still such a long way to go. I don’t want to die.”

The fundraising event will be streamed on YouTube at youtu.be/ZmqlGUkm5XQ

To read more about Jenny’s story, visit uk.gofundme.com/f/savejenny